secretramblingsofapastorswife

Sometimes my husband wows me. I mean really wows me. Like when I made a comment that I would love to have the back patio screened in and next thing I know he's built it from scratch with no real plans. And now I have a beautiful back patio screened in. Amazing! But those moments, as shocking and WOW as they are dont come close to the times when he teaches me things. And as much as I hate to admit it and yes I do, He really does teach me some incredible things. It was his book that changed my view of spina bifida more than anything thing else. You would think i wouldnt be surprised by something else he taught me. But I was. Sitting in Sunday School class with teens again. Not expecting anything to really truly HIT ME! And then he starts. It was the Sunday before Christmas so of course it was appropriate to talk about Mary the mother of Jesus. And of course I have spent my whole life hearing about Mary the mother of Jesus. But what he said and the view he came from rocked my happ...

Beautiful isnt it??? Don't you want one!! So make sure you pop on over to http://www.spinabifidakids.blogspot.com/ and scroll down till you find the giveaway post . (only one or two down) anyone can enter!! its not just for mommies of sb kids. its for ANYONE who likes pretty things.

So. Life never ceases to amaze me. Never. I am almost having a hard time searching for words to even begin this post. I'm actually going to write half of it over at The Journey website and half here. The personal half here and the other there. So now I have to figure out what to write here and what to write there. HA! Okay, well yesturday afternoon I was surfing the web during "nap time" (i use that term very lightly now) And I came across a sort of graph of children's Spina Bifida Levels and what there physical outcome usually is. It went something similiar to this...Not exactly this as I'm going from memory and this is just an example. L1- walk with arm crutches. full time wheelchair user later on in life So I scroll through to find Toby's level and BOOOM!! Full time wheelchair user later in life. This is what happened in my little heart and mind. My happy picture I have had in my mind of Toby. My picture of him walking around with arm crutches as a teenager...

Today I prayed. And today it shocked me how little I pray for the babies who have Spina Bifida. The mommy's who believe they have the right to decide if their child lives or not. Sometimes its easy to stay in my happy little bubble, assuming that no one would ever think that these children should not have a chance at life. An amazing life might I add. Today helped me realize how much I should be praying, not just once a year or once when someone really shakes me out of my little bubble. But continually and constantly. Knowing that God listens. There are so many reminders in my life of how amazing these children are. How completely 100% worth it they are! Ive gotten over 70 orders for necklaces and bracelets from my other blog and I've loved it. Its so amazing to sit there and look at all these little circles with children's name on them. Children's whose parents chose life. Its been amazing to look at all the words. Brave, perspective, fearless, and can. Realize how muc...

So as we all know from facebook, blogs, babycenter. The Spina Bifida Awareness Shirts are a hit. A much bigger hit than I ever even imagined. As of right now we are already over 200 shirts!! I stay awake at night now imagining angry customers who got the wrong sizes, boxes surronding me and none of the shirts fitting in them!! Its great! I had no idea how out of hand this was going to get. Not to mention people seeing the necklaces and bracelets and ordering them. Its fantastic, but slightly overwhelming! I love what Karen over at Carson's Corner said about spina bifida awareness I also wanted to mention that October is spina bifida awareness month. Spina Bifida is something that we have learned about through experience. However, I feel that people need to know what it is through influence as well. I think about all the precious babies who are not given the chance to life because there is a lack of proper information or a lack of proper counsel. How sad it is that spina bifida is c...

Im having a rough day. One of those nothing goes quite according to plan cause ive been at appointments with Toby. Trying to homeschool, now juggle 6 therapy sessions a week and any other extra appointments are taking a toll on my emotional and mental stability.!! So instead of sharing all my woes with you and sitting and feeling very very sorry for myself. I'm going to share a happy moment. I hope that people from my church family will especially enjoy this. Since our Pastor has been doing the "kids choir" every Sunday morning Ive enjoyed and not enjoyed it. Of course I love seeing all the kids up there and I love watching Gracie so proudly march up there to sing and all of my friends kids. But there was always someone missing. And that someone sat right next to me, (well sometimes, sometimes he prefered the smyer family) : ) Toby would never go up. The first time he tried he started making it that way and I honestly saw the shock of stairs and kids running hit him. It ...

We survived our week!!! We ended up having appointments Monday thru Friday for Toby. Poor guy, but nothing that a trip to mcdonalds couldnt cure. We will have more coming soon. Thats life though. Some results. We got molded for a back brace for Toby's new diagnosis of scoliosis. (bummer) He is going to start receiving speech therapy (they put him at the level of speech for half his age..crazy bummer) And Ocupational therapy.. (wasnt near as bad as speech but is still needed) which puts us at a grand total of 6 therapiest a week. Honestly im hoping it takes insurance a while to approve this one. : ) On a positive note I had the nicest therapist stop me today during PT and take the time to tell me about all these programs. (most I had heard of) But not only tell me, print out paper work, write down phone numbers, print off webpages. EVERYTHING!! I was so thankful. Toby and I were out in the most horrible rain ever for therapy today. We have to walk over a block to our car from therap...