Saturday, July 24, 2010

Social Security...Oh How We Love You!

So, I know it's either tons of posts or nothing at all for a while.
Well, this one is totally worth posting.
It couldn't have waiting for a better time.

We got our letter from SSI today.


Drum Roll....

Based on the facts they have received We will not being paying them back the 5,000.00 due to the fact that it was their fault!!

Love it!!

Love it!!

Love it!!

We had planned on getting a lawyer and fighting even more if we been rejected yet again, But hooray!!! We don't have to go down that road!

I know many of you have been praying and asking about it. So that's it. Such a long drawn out process to end with such a simple letter, but we are so thankful for our little letter.

Nate even joked we should laminate it and frame it!! :)

Friday, July 23, 2010

Holding Hands

This past week was our first double duty therapy. Tuesdays and Thursday Physical Therapy session for Toby. Between that and getting ready for VBS my poor house has suffered. For that reason this will be a short but sweet post.

If you read my last post over at SpinabifidaKids you would have read that Toby stood on his own for the first time.

Selina (our new PT for Toby) has really sparked some strong desires for us and really set the standard quite high. But oh it's so worth it.

Toby has walked with his arm crutches on his own!! Now this isnt the I'm standing at the kitchen and he takes steps across the living room all by himself. This is a painstaking process of me making promise after promise to not let him fall just to get that first step with my hands just inches from his arms.

It goes something like this.

Mommy: Toby do you trust mommy?

Toby: Yes..but but but...*tears*

Mommy: Toby I promise I'm not gonna let you fall. I promise.

Toby: *sobbing*

Mommy: What's scary Toby? Tell me why your scared?

Toby: I'm gonna fall

Mommy: I promise Toby. I promise promise promise. I will catch you. I promise to catch you

Then finally we get that first step. Of course then we get like 5 or 6 more right after that. And of course he's all smiles and super proud of himself. (which makes the tears and frustration totally worth it)

Tonight was an awesome night for me. Tonight I had Toby use one arm crutch and I held his hand while we walked to the couch in the living room. I have never been able to hold Toby's hand while he took a step. Its one of those things Ive cried over and I've just missed. He used to try to hold my hand in his wheelchair all the time and it just never worked. But tonight we got to hold hands!

It was big!

I didnt get a picture of it because of course I was busy, but I thought I would at least post a picture of our bedtime reading. Toby picked out 'Fancy Nancy' Oh that boy. No matter how much he loves Star Wars, Army men and all kinds of stuff. He'll still pick out something like Fancy Nancy!!

Wednesday, July 14, 2010


I wrote a post today for the spinabfidakids blog, but I really thought it belonged over here too, being that it was mainly about Toby. and since this blog is called raisingtoby! : )

Click Here to read my post over at the SpinaBifidaKids blog.

Saturday, July 10, 2010

It's been a while

just felt like i needed to add a picture.

Well let me give you the general news...its been a while.

Lovely medicaid has decided to take forever to approve ANYTHING. But low and behold everything has finally been put through the system.

Toby now has AFOs!!!! The short braces we have been praying for! With these braces came twister cables that attach all the way up to a belt on his waist. This has not come without some problems. We ended up with some serious sores and such for a little while, but got the belt readjusted and now we are good to go. God has really protected us from potentially serious issues.

We have yet to start therapy with Selina. However, we did get to go meet her and do an evaluation. Therapy will start this following week. You wont believe what she said at our evaluation. Okay, yes you will, because we have a pretty incredible God. She said that she believes Toby is..and I quote, "An excellent canidate for independant walking." Did you catch that? Let me rephrase. She believes that there is a good posibility that Toby could one day walk without the use his walker and without the use of crutches. She seems to be my type of therapist. She is going to push Toby to his fullest potential. We will be starting therapy 2xs a week instead of just once to try and give him a little bit of a boost in the direction she wants him. We are so thankful to get started on this road regardless of where it takes us.

God has been so good to us and has taken care of so many of our needs and even our wants.

We have yet to hear back from SSI on the 5,000 they are pretty sure we owe them and will begin the process of dealing with royalty checks for Nate's books.

Toby seems to be in a new stage of life right now. He's hit the age where kids directly ask him what is wrong with his legs. It is frustrating and heartbreaking, but we are getting through it and figuring out what the best way to handle this is. One mom actually sent her daughter over to our table at a restraunt to ask us What happened to him? (and yes in those words) I looked at her and said, nothing and turned arond. I really wanted to say, nothing sweety. what happened to your mom that she would think it is appropriate for you to come over and ask us that? Luckily I didnt say that because I'm pretty sure I recognized her from our summer VBS program after the fact. What a great testimony that would have been. At camp this past week someone asked Toby what was wrong with his legs. Toby just shrugged his shoulders and got really quiet. Just typing that makes my heart hurt all over again. I know that most children mean well, and either have never been exposed to a child with special needs so upclose and personal, however it is still hurtful and trying.
Toby is adorable with his walker and we do attract attention wherever we go. Sometimes it is welcome attention like when Elmo comes up and gives him a hug at a show, but sometimes it is unwelcome thats for sure. So we take it as it comes and pray for Gods grace and wisdom. I wonder where I will be with all of this in 6 months. If we will have a specific plan when asked questions, if Toby will begin to ask more specific questions. Or if this is just the way it will be for a while. Looking back on previous posts it seems like nothing ever really stays quite the same.

Well its been a while and I had a lot to catch up on. Have a great weekend