Monday, September 27, 2010

a moment of triumph

Im having a rough day. One of those nothing goes quite according to plan cause ive been at appointments with Toby. Trying to homeschool, now juggle 6 therapy sessions a week and any other extra appointments are taking a toll on my emotional and mental stability.!!
So instead of sharing all my woes with you and sitting and feeling very very sorry for myself. I'm going to share a happy moment.
I hope that people from my church family will especially enjoy this.

Since our Pastor has been doing the "kids choir" every Sunday morning Ive enjoyed and not enjoyed it. Of course I love seeing all the kids up there and I love watching Gracie so proudly march up there to sing and all of my friends kids. But there was always someone missing. And that someone sat right next to me, (well sometimes, sometimes he prefered the smyer family) : ) Toby would never go up. The first time he tried he started making it that way and I honestly saw the shock of stairs and kids running hit him. It made my heart hurt so bad for him. He just broke down crying right there and turned his little walker around and sat down with me. That was it for him. He wasnt going to try it again. Every Sunday Pastor would announce the kids to come up, I would lean over and ask, "Toby do you want to sing?" He would say, "NO" and I wouldnt push it. I just left it alone even though I wanted to be the pushy, you will get over this fear right now, type of mommy. So every Sunday even though I loved it, I hated it because it always made it so obvious how hard things were for him. Things that werer so simple for the other kids and how he saw the difference.
Well about 3 or 4 weeks ago. I leaned over and asked. and He said, "Okay. I'll try it." I about died right there in my seat. I about had a panic attack. Luckily Jessica (toby's best teenager as he calls her) has always said that when he's ready she would take him. She was sitting 2 rows ahead. I got her attention and off she went with him. I love that she knew just what to do. She didnt hold him the whole time. She held him till he got comfortable and then put him down and held his hands so he could stand right with all the other kids. It was a moment of triumph. Such a small thing but it was amazing.Only a few people knew how much that moment meant. And every week since he's gone up without question. The last 2 weeks he's gone with his walker with different people helping every week.

There are so many aspects of this story I love. And even though its kind of a bummer day. I cant really help but have a sense of happiness when I think about it.
hopefully I'll post a picture soon

Tuesday, September 7, 2010

survived the week

We survived our week!!!

We ended up having appointments Monday thru Friday for Toby. Poor guy, but nothing that a trip to mcdonalds couldnt cure.

We will have more coming soon.

Thats life though.

Some results. We got molded for a back brace for Toby's new diagnosis of scoliosis. (bummer) He is going to start receiving speech therapy (they put him at the level of speech for half his age..crazy bummer) And Ocupational therapy.. (wasnt near as bad as speech but is still needed) which puts us at a grand total of 6 therapiest a week. Honestly im hoping it takes insurance a while to approve this one. : )

On a positive note I had the nicest therapist stop me today during PT and take the time to tell me about all these programs. (most I had heard of) But not only tell me, print out paper work, write down phone numbers, print off webpages. EVERYTHING!! I was so thankful.

Toby and I were out in the most horrible rain ever for therapy today. We have to walk over a block to our car from therapy. It didnt hit me till we got outside that I would be carrying a 4 year old, papers from therapist, arm crutches and trying to balance an umbrella. Well of course our umbrella blew inside out 4 times. a car drove by and splashed me. the umbrella got blown out of my hand back into the street we had just crossed (which then we had to recross to save the umbrella) in all the hussle I put Toby into Milo's baby car seat (which he immediately got upset about, had to get back out in the rain and switch him) 2 cars pulled over and asked if I needed help. But the best part was. Toby and I just laughed. We were drenched from top to bottom, but it was so funny. Because if it COULD go wrong it DID go wrong!! I'm making sure it goes in my memory bank. Hoping it goes in his too.

On a totally different note. I wanted to give a shout out over to the SBkids blog. We are trying to do a giveaway and help raise awareness for SB and raise support for a program a mommy is trying to start. so click here to find out more and enter.

Hope you all have a wonderful day!! Goodnight!

Kari