secretramblingsofapastorswife

Today was a big day!! Toby got his first wheel chair a little before his second birthday. Toby stopped using that chair at his third birthday. Not because he needed a new one, but because he didnt need one at all. It's been sitting in our garage collecting dust. (dont worry we will be donating it to a worthy cause) But after over 2 years over no wheelchair. And after much discussion. We decided it was time for a chair again. Not because he's not still amazing us. Not because he doesnt prove doctors wrong all the time. Not because he isnt walking amazing well. It was just time. There comes a time when a 5 year old is just too big to be held. Too big to be put in a stroller. There comes a time when a 5 year old little boy wants desperately to keep up with all of his friends. This is toby waiting for his chair. This is toby trying desperately to get a glimpse of his chair when the door opened. we've waited at least a couple months. Toby slightly irritated because he was so ex...

wow it's been a while!!! since January!!! awww im a bad blogger!! well, mother's day a good day to start back. I'm sitting here at the end of the day, a long day. All the kids are in bed, hopefully sleeping and I just read a great post over at the SBkids blog and it just got me thinking. You know something makes me proud, prouder than usual on mother's day. It's being a mom of a child with special needs. I'll be honest there have been times I want to hide those needs from the world. (not my best moments) but then there all times when I want to shout it. Mother's day makes me want to shout it. I go through most days just living life, just doing what we do. Dealing with therapists galore, doctor's appointments, new medical junk, finding place for new medical junk, braces, splints, scolosis. and I just deal and keep going. There are few friends that have the ummmmm bad chance of answering their phone when I'm having a bad day. You know, those bad days w...

There are heros out there. Real ones. I'm not just talking firefighters, police officers and people in spandex. : ) I'm talking the average person being a hero. (which then of course makes them no longer average.) I have a hero right now. She wouldnt know it if I didnt tell her. She might even wonder why. She might laugh and walk away quickly to avoid any blubbering long thank yous from me. But she's competely and totally my hero. (which then of course would make her a heroine) The fact that she doesnt walk around letting everyone know how amazing she is just makes her that much more amazing. Now to the story: My husband is the director of the Upwards Basketball Program at our church. I have a love/hate relationship with Upwards. Its a great program but it takes a lot of time. This year Gracie wanted to play basketball. We decided to let her but a part of me worried to sick about it. Toby's favorite game is basketball. FAVORITE. Toby cant play upwards. 1. he's too...