So yesterday was a wonderfully exhausting day. It's one of those days where you see God work, but you still walk away exhausted.
Toby had another clinic appointment. He underwent CT scan, VCUG test, Urodynamics Study, and an Ultrasound. What a day for my little guy!!
He was fine as long as everyone let him know that there were no "IV Pillows." He really hated it the last time we were in the hospital and they taped a board to his arm for his IV.
So, we left the house at 6:15 a.m., and I couldn't believe how much he talked on the way. The last thing I wanted to do was talk, but I had to smile at his spirit even early in the morning.
He has been excited about talking about medical stuff and his doctors and who they are and what they do. He's starting to put everything together more. So first we saw
Dr. Pepas who let us know that his bladder is great!! However, we then found out that his reflux is back!! Honestly, I didn't even know kidney reflux COULD come back. So that was kind of a shock. So now we are on antibiotics all the time. Bummer!! But we have to protect those kidneys.
We then saw Neurosurgery. Toby's ventricles were small, so they adjusted the pressure again. Tullous was planning on this the whole time, so no big deal. It's incredible that they can do this with a magnet!!
Then we saw ortho. Now I will have to admit that this was my shining moment. My moment of pride and even the joy of handing a doctor his shoes to eat!! If you can remember back to my last post, Toby saw Ortho and we were told that he was functioning at the highest level on his spine that I had ever heard any one say, L1!! (By the way, the lower on the spine the better because the lower the function the more muscles and things are functioning. For example, L1 is much worse than L5.) I was super upset and frustrated. He let me know not to plan on walking and that we should just help him learn enough to make it to a bathroom and stuff. Super depressing. Well, only about TWO MONTHS LATER, Toby is not only walking but is walking all the time. WITH ONE BRACE UNLOCKED!!! Super HUGE!! Luckily, Toby was in the mood to show off and walked all over the place for his doctor. Needless to say, the doctor was surprised and then said Toby was functioning at the lowest level I had hear--L4 OR even L5!!! So that was an incredibly great moment for me. Just another time in my life that I can see God working miracles. It was nice to see it in the face of a doctor who wasn't convinced a couple months ago.
My God is good. And my Toby is working hard!!!
So that was our appointments. We left in record time, about 3:30 p.m., came home, made dinner and out the door for upwards practice. It was a busy day, and I'll admit that I am fighting the grumpies today. But I am FIGHTING THEM! :)